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Cystic fibrosis drug sales drive Vertex revenues higher

Sales of the ground breaking cystic fibrosis drug KAFTRIO was the main driver behind Vertex Pharmaceutical's revenues surging to $1.955 billion (€1.79 billion) last year.

Business • 03 Jul 23

CF and double transplant patient Louis Duffy-Barrett tested positive for Covid-19 ten days ago

CF patient's vaccine call after positive Covid-19 test

Coronavirus • 29 Mar 21

Benat Broderick says there is no excuse for not wearing a face covering

Teenager with CF urges use of face coverings

A Dublin teenager living with cystic fibrosis has spoken of the importance of people wearing face coverings to help protect the vulnerable in our society.

Coronavirus • 30 Jul 20

Dr Colin Edwards, Chief Scientific Officer of PatientMpower (l) and Eamonn Costello, CEO of PatientMpower

PatientMpower launches CF home-monitoring solutions

Digital healthcare company PatientMpower has developed new technology that enables home monitoring of patients with cystic fibrosis (CF).

Business • 18 May 20

Christine and Anthony Hyde with their son Darragh

Irish couple loses appeal over Australian visas

An appeal by an Irish couple facing deportation from Australia because their young son has cystic fibrosis has been rejected.

Ireland • 07 May 19

Ben Mudge, who was diagnosed with cystic fibrosis at birth, believes exercise has been an important factor for him in maintaining his healthy lung function

Belfast trainer helps people with cystic fibrosis

A fitness trainer from Belfast who has cystic fibrosis says a new online workout programme could be "massive" for people living with the disease.

Regional • 03 Apr 19

2016 Programme for Government committed to planning a dedicated unit at the hospital for inclusion in the 2017 Capital Plan

CFI upset at delay to building of Cystic Fibrosis unit

Cystic Fibrosis Ireland has expressed upset and frustration over a two-and-a-half-year delay in progress on building a promised new inpatient Cystic Fibrosis unit at Beaumont Hospital in Dublin.

Health • 06 Nov 18

Study has been led by Professor Barry Plant of Cork University Hospital

Leading cystic fibrosis scientists gather in Cork

Leading scientists in the field of cystic fibrosis research are in Cork today to evaluate the findings of CFMATTERS - an Irish-led, €6 million EU-funded study into the effectiveness of using new DNA-based technologies to treat the disease.

Science • 29 Jun 17

It is understood Orkambi will cost hundreds of millions over ten years

Cabinet commitment on cystic fibrosis drugs

Minister for Health Simon Harris has secured a long-term commitment from the Cabinet for the funding of Orkambi and Kalydeco drugs and future treatments for cystic fibrosis.

Health • 26 Apr 17

The scientists found fat soluble vitamins can stop antibiotics from being impeded

Discovery could reduce CF antibiotic resistance

Scientists in Belfast have found a potential new mechanism for making antibiotics for treating cystic fibrosis (CF) more effective in the face of growing resistance.

Science • 27 Mar 17

Cystic Fibrosis patients and their families have expressed frustration that no agreement has been reached

Dept expects agreement on CF drugs in 'matter of weeks'

The Department of Health has said it expects negotiations with a drug company on treatments for Cystic Fibrosis will conclude "in a matter of weeks".

cystic fibrosis • 19 Mar 17

Simon Harris said his overriding priority is to make sure that any agreement reached would provide certainty

Progress reported in talks on cystic fibrosis drug

Minister for Health Simon Harris has said he hopes the process to determine if the cystic fibrosis drug Orkambi can be covered by the Health Service Executive can be concluded within a period of weeks.

Health • 27 Feb 17

The announcement comes after hundreds of people took part in a protest at Leinster House demanding access to the drug

Orkambi negotiations believed to be planned

Negotiations appear set to take place between the Health Service Executive and drug manufacturer Vertex concerning the price of Cystic Fibrosis drug Orkambi.

Orkambi • 07 Dec 16

Simon Harris said other countries had the same problem negotiating with the manufacturer of the CF drug

Harris says negotiations on CF drug not over

Minister for Health Simon Harris has said he wants to make the drug Orkambi available to Irish cystic fibrosis patients and that negotiations with Vertex are not finished.

News • 01 Dec 16

The drug made by Vertex Pharmaceuticals targets the cause of cystic fibrosis

Minister says CF drug negotiations 'a priority'

The Minister for Health has moved to reassure cystic fibrosis patients after the HSE was advised not to fund a drug that could benefit many people living with the condition.

News • 02 Jun 16

The new inhaled antibiotics will target lung infection which causes illness and death in patients with the diseases

New drugs to help CF and bronchiectasis patients

New drugs that could help patients suffering from cystic fibrosis and bronchiectasis are to be developed by scientists at Queen's University Belfast, as part of a €50m European research project.

News • 07 Sep 15

Cystic Fibrosis affects 1,200 children and adults in Ireland

Encouraging results from new CF gene therapy trial

An early-stage trial of a new gene therapy for people with Cystic Fibrosis has delivered what scientists claim are encouraging results.

News • 03 Jul 15

Gene therapy for Cystic Fibrosis 'encouraging'

An early-stage trial of a new gene therapy for Cystic Fibrosis sufferers has delivered what scientists claim are encouraging results.

News • 03 Jul 15

Valentina Maureira and Chile's President Michelle Bachelet take a selfie

Chilean president visits ill girl who wants to die

Chile's President Michelle Bachelet has visited a 14-year-old girl suffering from cystic fibrosis who made a video appeal to be allowed to end her life.

News • 28 Feb 15

Ireland has the highest incidence of Cystic Fibrosis in the world

New Cystic Fibrosis discovery may help sufferers

Scientists say a Cystic Fibrosis discovery may lead to a new way to treat patients which will help them breathe more easily.

News • 25 Feb 15

The house is located about 2km outside the village of Cong

Woman selling house to raise funds for CF unit

A house in Co Mayo is being sold to raise funds for the building of a new cystic fibrosis unit in the west.

News • 10 Dec 13

The drug can lead to significant improvements for patients with a particular mutation of cystic fibrosis

Kalydeco drug cleared for cystic fibrosis patients

Minister for Health James Reilly has announced that the Government has approved the cystic fibrosis drug Kalydeco for use in Ireland from 1 March.

News • 01 Feb 13

The report says the drug is currently too expensive to be cost-effective

Report suggests drug 'risk-sharing scheme'

A national assessment system for new drugs has recommended for the first time that a pharmaceutical company should only be reimbursed if the treatment works.

News • 21 Jan 13

The meeting is being held at St Vincent's University Hospital

New procedures drafted for CF patients

New operational procedures for patient treatment have been drafted after a meeting between the Cystic Fibrosis Association, The Health Service Executive and St Vincent's Hospital.

News • 18 Dec 12

Orla Tinsley said it was 'grinding' that there was still an issue with treatment

Concern over treatment of Cystic Fibrosis patients

Cystic Fibrosis campaigner Orla Tinsley has said an agreement to provide a specific number of dedicated beds for Cystic Fibrosis patients at St Vincent’s Hospital in Dublin urgently needs to be renegotiated.

News • 03 Dec 12