Teenager with CF urges use of face coverings A Dublin teenager living with cystic fibrosis has spoken of the importance of people wearing face coverings to help protect the vulnerable in our society. Coronavirus • 30 Jul 20
PatientMpower launches CF home-monitoring solutions Digital healthcare company PatientMpower has developed new technology that enables home monitoring of patients with cystic fibrosis (CF). Business • 18 May 20
Irish couple loses appeal over Australian visas An appeal by an Irish couple facing deportation from Australia because their young son has cystic fibrosis has been rejected. Ireland • 07 May 19
Belfast trainer helps people with cystic fibrosis A fitness trainer from Belfast who has cystic fibrosis says a new online workout programme could be "massive" for people living with the disease. Regional • 03 Apr 19
CFI upset at delay to building of Cystic Fibrosis unit Cystic Fibrosis Ireland has expressed upset and frustration over a two-and-a-half-year delay in progress on building a promised new inpatient Cystic Fibrosis unit at Beaumont … Health • 06 Nov 18
Leading cystic fibrosis scientists gather in Cork Leading scientists in the field of cystic fibrosis research are in Cork today to evaluate the findings of CFMATTERS - an Irish-led, €6 million EU-funded … Science • 29 Jun 17
Cabinet commitment on cystic fibrosis drugs Minister for Health Simon Harris has secured a long-term commitment from the Cabinet for the funding of Orkambi and Kalydeco drugs and future treatments for … Health • 26 Apr 17
Discovery could reduce CF antibiotic resistance Scientists in Belfast have found a potential new mechanism for making antibiotics for treating cystic fibrosis (CF) more effective in the face of growing resistance. Science • 27 Mar 17
Dept expects agreement on CF drugs in 'matter of weeks' The Department of Health has said it expects negotiations with a drug company on treatments for Cystic Fibrosis will conclude "in a matter of weeks". cystic fibrosis • 19 Mar 17
Progress reported in talks on cystic fibrosis drug Minister for Health Simon Harris has said he hopes the process to determine if the cystic fibrosis drug Orkambi can be covered by the Health … Health • 27 Feb 17
Orkambi negotiations believed to be planned Negotiations appear set to take place between the Health Service Executive and drug manufacturer Vertex concerning the price of Cystic Fibrosis drug Orkambi. Orkambi • 07 Dec 16
Harris says negotiations on CF drug not over Minister for Health Simon Harris has said he wants to make the drug Orkambi available to Irish cystic fibrosis patients and that negotiations with Vertex … News • 01 Dec 16
Minister says CF drug negotiations 'a priority' The Minister for Health has moved to reassure cystic fibrosis patients after the HSE was advised not to fund a drug that could benefit many … News • 02 Jun 16
New drugs to help CF and bronchiectasis patients New drugs that could help patients suffering from cystic fibrosis and bronchiectasis are to be developed by scientists at Queen's University Belfast, as part of … News • 07 Sep 15
Encouraging results from new CF gene therapy trial An early-stage trial of a new gene therapy for people with Cystic Fibrosis has delivered what scientists claim are encouraging results. News • 03 Jul 15
Gene therapy for Cystic Fibrosis 'encouraging' An early-stage trial of a new gene therapy for Cystic Fibrosis sufferers has delivered what scientists claim are encouraging results. News • 03 Jul 15
Chilean president visits ill girl who wants to die Chile's President Michelle Bachelet has visited a 14-year-old girl suffering from cystic fibrosis who made a video appeal to be allowed to end her life. News • 28 Feb 15
New Cystic Fibrosis discovery may help sufferers Scientists say a Cystic Fibrosis discovery may lead to a new way to treat patients which will help them breathe more easily. News • 25 Feb 15
Woman selling house to raise funds for CF unit A house in Co Mayo is being sold to raise funds for the building of a new cystic fibrosis unit in the west. News • 10 Dec 13
Kalydeco drug cleared for cystic fibrosis patients Minister for Health James Reilly has announced that the Government has approved the cystic fibrosis drug Kalydeco for use in Ireland from 1 March. News • 01 Feb 13
Report suggests drug 'risk-sharing scheme' A national assessment system for new drugs has recommended for the first time that a pharmaceutical company should only be reimbursed if the treatment works. News • 21 Jan 13
New procedures drafted for CF patients New operational procedures for patient treatment have been drafted after a meeting between the Cystic Fibrosis Association, The Health Service Executive and St Vincent's Hospital. News • 18 Dec 12
Concern over treatment of Cystic Fibrosis patients Cystic Fibrosis campaigner Orla Tinsley has said an agreement to provide a specific number of dedicated beds for Cystic Fibrosis patients at St Vincent’s Hospital … News • 03 Dec 12
CF patients waiting for room at St Vincent's The Cystic Fibrosis Association of Ireland has said there are five CF patients waiting for an inpatient room in St Vincent's University Hospital in Dublin. News • 27 Nov 12
