The families of four infants, who died in NI hospitals after contracting pseudomonas, have criticised the quality of information provided by health authorities when their children became ill.
A final report into the pseudomonas outbreak was published today.
It concludes that information shared between the various health trusts involved in managing the outbreak was insufficient and lacked clarity.
It also found that communications between medical staff and parents could have been improved.
Three babies died after contracting the infection at Belfast's Royal Jubilee Maternity Hospital in January.
Another child, ten-day-old Caolan Burke died at Derry's Altnagelvin Hospital in December.
At both hospitals, the infection was caused by water from contaminated taps in neonatal units.
Today's report revealed that the parents of babies who were infected felt they had not been "made aware in time" that their children had contracted pseudomonas.
In some cases, families had not been initially made aware of the seriousness of their baby's condition.
Some parents said the illness had been "mentioned in a passing conversation" and that, for some, the "first time they found out about it was through a leaflet".
Parents also said they "didn't suspect that the infection could end in death".
Some families only found out about the nature of the illness through the media.
The parents of children who had been colonised by the infection said they felt very fearful, and claimed that they had been ignored, pushed to the side and marginalised.
