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Major improvements for people living with CF

A report has shown major improvements in the quality and length of lives of people in Ireland living with cystic fibrosis.

Health • 04 Apr 18

It is understood Orkambi will cost hundreds of millions over ten years

Cabinet commitment on cystic fibrosis drugs

Minister for Health Simon Harris has secured a long-term commitment from the Cabinet for the funding of Orkambi and Kalydeco drugs and future treatments for cystic fibrosis.

Health • 26 Apr 17

Orkambi will be provided for patients aged 12 years and older

HSE reaches deal on provision of cystic fibrosis drugs

The HSE has reached agreement, in principle, with the drug company Vertex Pharmaceuticals for the drugs Orkambi and Kalydeco to be provided to people with cystic fibrosis from the beginning of next month, the Dáil has been told.

Orkambi • 11 Apr 17

Cystic Fibrosis patients and their families have expressed frustration that no agreement has been reached

Dept expects agreement on CF drugs in 'matter of weeks'

The Department of Health has said it expects negotiations with a drug company on treatments for Cystic Fibrosis will conclude "in a matter of weeks".

cystic fibrosis • 19 Mar 17

Simon Harris said his overriding priority is to make sure that any agreement reached would provide certainty

Progress reported in talks on cystic fibrosis drug

Minister for Health Simon Harris has said he hopes the process to determine if the cystic fibrosis drug Orkambi can be covered by the Health Service Executive can be concluded within a period of weeks.

Health • 27 Feb 17

The announcement comes after hundreds of people took part in a protest at Leinster House demanding access to the drug

Orkambi negotiations believed to be planned

Negotiations appear set to take place between the Health Service Executive and drug manufacturer Vertex concerning the price of Cystic Fibrosis drug Orkambi.

Orkambi • 07 Dec 16

Simon Harris said other countries had the same problem negotiating with the manufacturer of the CF drug

Harris says negotiations on CF drug not over

Minister for Health Simon Harris has said he wants to make the drug Orkambi available to Irish cystic fibrosis patients and that negotiations with Vertex are not finished.

News • 01 Dec 16

Cystic Fibrosis Ireland has said the drug sustains people's health and slows their decline

HSE 'disappointed' at progress in CF drug talks

The Health Service Executive has said it is disappointed with the level of meaningful engagement with the manufacturer of the drug Orkambi in lowering its price for Cystic Fibrosis patients.

News • 27 Nov 16

The drug made by Vertex Pharmaceuticals targets the cause of cystic fibrosis

Minister says CF drug negotiations 'a priority'

The Minister for Health has moved to reassure cystic fibrosis patients after the HSE was advised not to fund a drug that could benefit many people living with the condition.

News • 02 Jun 16

Orkambi