Teenager Ella O'Riordan from Bagenalstown in Co Carlow, who has endometriosis said the pain feels like someone is stabbing her and twisting every organ in her body and not letting go.
The 15-year-old said before she received her diagnosis she was being told by some doctors that the pain was all in her head.
Ella said doctors were giving her medication like paracetamol that was not working.
"Before I got diagnosed I kept saying oh it's in my head it's in my head because no one would listen to me," she said.
"I remember when I got diagnosed I was bawling crying knowing that I was finally being believed."
Ella said that she got ablation surgery here in Ireland but she has been no better since the treatment.
She said that the condition has resulted in her missing many days in school and she said she would get in trouble for not going.
"I have missed to many days of school and teachers not understanding, telling me I just need to get out of bed and go into school and I was like I can't, I was told to take panadol and get on with it," she said.
"My friends would never understand because I would have to cancel plans last minute because I couldn't get out of bed because of the pain."
Ella's mother Brenda said that Ella has suffered horrendously since she was about eight-years-old.
"She's in bed, she can't move she's crippled in pain, her legs are numb she can't feel her feet. it's very very hard to see your child in pain and nothing you can do to relief that," she said.
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Brenda said that doctors told Ella the pain was in her head and that she needed to take panadol.
Brenda said she is hoping to bring Ella to Greece for excision surgery so she can get better and have full attendance in school before her leaving cert in two years.
