A national strategy to reduce the incidence of sudden unexplained death in epilepsy (SUDEP) is needed here, according to Epilepsy Ireland.
Research shows that around 33 people die each year due to SUDEP and many of those who die are often young and otherwise healthy.
Studies are continuing into SUDEP, which is confirmed when someone with epilepsy dies, and no other cause of death can be found during the post-mortem examination.
Epilepsy Ireland is the national patient organisation representing people with epilepsy and their families.
The exact cause of SUDEP is unknown but there are known factors that can increase a person's risk of SUDEP.
These factors include having frequent seizures, not taking medication as prescribed and alcohol or substance misuse.
Paddy McGeoghegan, Advocacy & Communications Manager with Epilepsy Ireland, said a national strategy was needed for a coordinated approach to try and save lives and develop better awareness.
The organisation has appealed to the Government and all Oireachtas members to help make this a reality.
Over 45,000 people in Ireland have epilepsy, including 10,000-15,000 who are living with uncontrolled seizures.
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