The parents of the late Harvey Morrison are due to meet Tánaiste Simon Harris and Minister for Health Jennifer Carroll MacNeill later today, to discuss their son's care.
Gillian Sherratt and Stephen Morrison are looking for an inquiry into children's spinal care, as are patient advocacy groups.
The parents met the Tánaiste and the Minister previously in late September and it was agreed that an inquiry would be established, but the nature of the inquiry has yet to be decided.
Opposition parties have been calling for a Statutory public inquiry.
That is expected to be the main focus of today's meeting.
Harvey, from Clondalkin in Dublin, had spina bifida and scoliosis and was nine years old when he died in July this year.
He waited a number of years for spinal surgery and was first placed on the waiting list in February 2022.
The curvature of his spine was 130 degrees when he had surgery last November.
Recently it emerged he had been taken off the CHI waiting list for urgent scoliosis surgery without his parents' knowledge or consent.
A weekend report in The Sunday Times claimed he was removed from the list as it was believed he was a palliative patient.
The newspaper says the claims were made by a whistleblower within CHI in a Protected Disclosure which is currently under investigation.
This was despite Great Ormond Street Hospital in London saying he was a suitable candidate for spinal strengthening surgery.