Large crowds have turned out for a march in Dublin in memory of nine-year-old Harvey Morrison, who had spina bifida and scoliosis and died last month.
Protesters marched from the Garden of Remembrance in Dublin to Customs House saying "what do we want, justice for Harvey, when do we want it now".
Organisers say more than 1,000 people turned out for the demonstration.
Watch: Parents of Harvey Morrison call for reform at CHI
Harvey's parents Stephen Morrison and Gillian Sherratt said he waited years for a spinal operation, and only got one last November when the curve in his spine had reached 130 degrees.
Last year, they said that he had been removed from a Children's Health Ireland (CHI) waiting list for urgent scoliosis surgery without their consent or knowledge. He was first placed on the waiting list in February 2022.
He died on 29 July and his mother said earlier this month that they did not have a cause of death.
Advocacy groups have called for a statutory inquiry into the reasons behind the backlog into spinal surgeries for children and what they say is a failure in care.
They say children have been suffering and waiting too long for the care and surgery they need.
They say they want answers for years of mismanaged waiting lists and resources.
Protesters were critical of Tánaiste Simon Harris, who in 2017, when he was Minister for Health, said no child would have to wait longer than four months for spinal surgery.
Last week, Mr Harris spoke to Harvey's mother and said he would meet her in the "near future".
Mr Morrison and Ms Sherratt have said there needs to be a change in children's healthcare, specifically in relation to children with Spina bifida and Scoliosis.
They said their son Harvey was robbed of a large portion of his childhood waiting for much needed surgery.
Ms Sherratt said: "Harvey was not treated well, he only lived to nine and a half, he spent 33 months deteriorating in pain, not being able to plan family holidays and not being able to do things for the level of pain he was in.
"We had to watch him deteriorate and when he finally got the surgery and was recovered he only got eight more months."
Mr Morrison said watching his son not getting the treatment he needed had a massive impact on the family.
He said: "It absolutely destroys you, it destroys you as a human being, it has a massive effect on your whole family, on you as well, it's horrible."
Stephen said there needs to be a massive change in relation to paedeatric health services and disability services in Ireland.
Minister for Health asks for multidisciplinary report
In a statement to RTÉ News the Department of Health said Minister Jennifer Carroll McNeill, has asked CHI and the HSE to carry out a multidisciplinary report on the timeline surrounding Harvey care.
It also said the HSE Chief Executive has formally commissioned an audit of governance and equity in patient access and waiting list management at CHI.
It said the audit aims to assess governance and equity in access to care within CHI, especially regarding the balance between public and private patient management.
The outcome of this audit is expected in the coming months.
In a statement, Children's Health Ireland, said demand for spinal surgeries has increased by 17% this year.
Figures how at the end of July this year 231 children were waiting for spinal surgery.
Thirty-six children are waiting between three and six months, 38 are waiting for over six months.
