On this week's programme, Miriam talks to 25-year-old cystic fibrosis campaigner Orla Tinsley, and her parents, Brian and Patricia.

They talk about discovering Orla's diagnosis and how as a baby she was very sick and had an operation from which they feared she might not recover. Brian remembers, "We were told she kind of wouldn't make it and we were looking at the next morning, thinking she wouldn't be long for this world... but by morning... she had inched forward!" "She's a tough cookie," Patricia says.

They decided as a family to deal with her illness in a matter-of-fact way. But Patricia, a nurse, while glad to be able to provide some of Orla's care at home, also hated having to do it: "I thought, this is my daughter, I am sticking needles in my daughter, that was very hard."

Orla's parents talk about their pride in Orla's advocacy for better facilities for cystic fibrosis patients in Irish hospitals, a campaign which has been instrumental in bringing about the opening in the past month of a dedicated cystic fibrosis ward at St Vincent's Hospital, with 20 in-patient single en-suite beds, 10 day beds, and a number of isolation rooms. Orla herself has been a patient there in the past weeks, and recalls the emotion of walking in and finally seeing it in operation. Everybody had red eyes from crying the day it opened, she recalls, "even the consultants!"

One of the songs Patricia and Orla used to listen to in the car on the way to and from Temple Street Children's Hospital was A Woman's Heart by Eleanor McEvoy. It's one of their music choices, along with Habanera from Bizet's Carmen (Brian's choice) and Wake up Boo by the Boo Radleys.

"One of the things we worried about with Orla was that she would be defined by her illness. And she has a lot more to her," Brian says. "I used to think that too," Orla says, "but the more I campaigned, and writing my book helped too, I saw that only I could set those limits for myself. You have to be true to who you are."

Orla Tinsley's memoir Salty Baby is published by Hachette.

And Sunday morning's programme includes a surprise performance from Eleanor McEvoy. Eleanor is pictured, above, second from left, with, left to right, Patricia, Orla and Brian.