The 13-year-old daughter of Cork woman, Vera Twomey has died.
Ava Barry had Dravet Syndrome, a rare form of epilepsy which caused her to have daily seizures.
Ms Twomey fought a lengthy campaign before she gained access to medicinal cannabis for Ava.
Ms Twomey who is from Aghabullogue, Co Cork had walked from Cork to Leinster House in Dublin on two occasions in a bid to highlight the plight of her young daughter.
Ms Twomey published a book called 'For Ava' in 2019 in which she told of the struggles that her family experienced when her daughter was seriously ill.
She was asked to speak in the House of Commons in London in 2019 about the benefits of the alternative medicine in treating conditions such as severe epilepsy.
