A north Kerry community is pulling out all the stops to raise funds for a 4-year-old local child with a rare genetic condition in the hope of making life a little bit easier for her.
Among those who have come to the aid of Rose O'Flaherty, who was diagnosed with Spinal Muscular Atrophy (SMA) at 9 months, is the local Athletics' club in Listowel, the Kerry Crusaders.
Last weekend, they raised €2,000 with a sponsored run around the Ring of Kerry, having already donated a €2,750 specially-designed car seat for Rose.
Rose, who lives in Ballymacelligott with her parents, Thomas and Karen, and her six-year-old sister Kate, requires 24-hour care.
SMA is a rare and serious genetic neuro-muscular condition with no cure. The symptoms include severe muscle weakness and breathing difficulties.
In a bid to help the family adapt their home and provide treatments to help manage Rose's symptoms, the local community have been busy fundraising over the past month.
So far, they've raised €60,000 of a €250,000 target.
Conor Ellard, who lives locally and is helping with the fundraising, says people have been fantastic but there is still a long way to go.
"I worked with Thomas and I really felt for the family especially in the past year with the pandemic which saw Thomas - a coach driver - without work and his income halved," he said.
"I know they can't afford to do all that they want to do to improve Rose's quality of life without help.