Within Elaine and Thomas O'Reilly's family three of their four children suffer from the genetic disorder called Fragile X. Fragile X is a genetic disorder that results in a wide range of developmental, physical and behavioural problems and is the most common cause of inherited intellectual disability.
For the first fourteen years nobody could explain what was wrong with Philip who is now 33, Darren who is 27 and Miranda who's 21. Elaine and Thomas struggled with doctors, fought with hospitals, sold furniture to pay medical expenses and still fight today for essential services for their dependent children.
To find out more about Fragile X or for support information visit: www.fragilex-ireland.org/